My youngest son was born with special needs in 2010. He had cataracts, hypospadias and failed his hearing test. He spent three days in the NICU to run tests and determine what happened to caused all his medical issues, but we never received any answers. A few months later, he was diagnosed with Cerebral Palsy and had to wear a helmet to reshape his head. He is now 2 1/2 and is able to walk, can see with bifocals and hears with his hearing aids. He is delayed and speaks a few words, but is picking up sign language quickly. We are hopeful he will communicate with words soon. Does he have a disorder or disease that caused all this? Well, we may never know.
In the past two years, he has had CT scans, genetic screenings, three genetics specialists, bone scans, blood work, DNA tests, specialty clinics and more tests than I care to remember. The verdict is always: ‘Mr. & Mrs. McDonald, we don’t know what caused your son’s problems’. For the first few years, I just could not accept that the doctors and all these tests could not figure out why my child had so many medical issues and delays. I wanted an answer. I wanted a diagnosis. I wanted to know what to expect. I wanted to know why.
But, I may never know why our son was born with special needs and I’m going to have to be okay with that. I would love to know, but the reality is, some things just can’t be explained. We’ve exhausted all our resources to find an answer. Even three geneticists are completely stumped. They don’t know what tests to run or where to look for clues to make a diagnosis.
I still struggle with not knowing, but it is getting easier. My son has excelled despite his disabilities and most days I don’t even notice he is delayed. He is just a fun loving, cute toddler who loves to play, laugh and dance. His disabilities have kept me up crying many a night, but having him in my life has been a blessing. I have learned so much about patience, acceptance and persistence. He has changed my life in so many ways and I am so grateful for him. We may never know what caused all his issues, but it doesn’t matter anymore. He is my heart.
Author: Nicole McDonald, a stay-at-home mom to three kids, age 7, 4 and 2. She teaches coupon, meal planning, frugal fun with kids and freebies classes and blogs atwww.momsavesmoney.net. Her e-book ‘The Extraordinary Art of Couponing’ is available on Amazon, Barnes & Noble and Smashwords.